Tuesday, March 25, 2014

Miles illness

If you follow our blog, then you've probably noticed more times then not that Miles (and Brooklyn) have struggled with stomach issues over the past 10 months.  Remember all 3 of our kids had the Cyclosporias parasite last summer?  Well, over time and after monthly episodes/outbreaks as I call them, I started realizing getting fed up with how much our little ones were sick, the severity of their sickness, I was completely over the long nights of vomiting (because that never seemed to occur during the day) as well as the continuos bathroom trips because our sweet kids couldn't control their bowels.  Sorry if that's TMI, but it's true and has been our real life.  We spend every month at the doctors office and a few months I contributed their sickness to a family stomach bug because if one got sick the other would get sick.  Then, symptoms started escalating-- each were different for Miles and Brooklyn but we just had enough.  I knew it wasn't healthy for them, I knew that we couldn't keep doing this every single month so it was time to get some answers.  All the parasite, bacteria, normal tests kept coming back negative not really explaining what was wrong with them.  However, one set of tests showed an elevation in Miles blood count letting us know there was some form of infection, we just didn't know where.  Soooo.. off we went to a Pediatric Gastroenterologist. 

The closest one that was recommended to us was in Lubbock, but that didn't bother us.  We were able to get an appointment fairly quickly and drove the 3 hours one morning just Brooks, Miles and I.  For starters... it was so wonderful to get some one on one time with Miles.  He is a sweet kid and enjoys just hanging out.  We loved talking with him and listening to him share things with us one on one!  Truly a gift to have so much alone time together, no distractions, and no one interrupting him!  We had a consultation with the doctor who agreed that Miles monthly sickness didn't make sense and shouldn't be happening based on all that we had done to try and control things so he ordered a colonoscopy an upper GI scope.  Before we headed back to Borger we stopped at a Starbucks to grab a coffee and a sweet man paid for our drinks and Miles got his own cake pop for being so brave at the doctors office!  He was pumped it was all his!!  

We were given explicit instructions on how to flush Miles out so that his body would be nice and ready for the procedures.  If you've ever wondered what it's like to keep a 3 year old from eating for 24 hours and only being allowed to drink a blue liquid in 12 hours that contains enough laxatives to last an adult 2 weeks... it's not fun!!!  And if you think a 3 year old would be all about eating as many popsicles and frozen ices.... you can expect them to get tired of it by the 4th or 5th one in 6 hours.  None the less, Miles pushed through and we survived once the laxatives made it through his body around 8pm that night.    He really is a trooper!  We had some gracious friends who were willing to take Brooklyn and Gavin the night before and let them spend the night since we had to get up at 4am to drive back to Lubbock for Miles' procedures.  

I was pretty anxious the entire drive to Lubbock, I prayed a lot that we would get some answers and something would be brought to light.  I prayed for Miles that the entire experience would be "easy" for him, he wouldn't be nervous or scared and I'm happy to say our prayers were answered.   The hospital was wonderful and did a great job catering to our little guy.  They brought him colors and books, a handmade pillow with dogs as a gift to take into the operating room, and even let him decorate his "sleeping mask".  He put blue stickers all around it!  Miles had to get an enema, which I had to give him and you talk about heartbreaking to see his face and hear the words.. "mommy, you hurt me."  He eventually got over it, but from that point forward he was MUCH more quiet and reserved through the process as he waited.  We were eventually brought to a waiting area where we sat with other patients who were before us.  It was there that Miles fell asleep while coloring.  Talk about an answered prayer!  It was wonderful.  It allowed Brooks and I a little down time and prevented us from having to keep Miles laying in his bed while we waited.  


The anesthesiologist was WONDERFUL and when he came to talk to us and saw Miles sleeping he told all the nurses to leave him alone and not prep him before going in.  They ended up taking him back while he was still sleeping, put him to sleep, AND THEN set all the wires up on his body.  The procedure lasted only 25 minutes, and Miles was wheeled out to us.  It took him about 20 minutes before he woke up and he never knew anything happened!!!  What he did know was that he was hungry!!  He was also very curious about all the wires stuck to him and why so many people were watching him when he woke up!  We had to stay at least an hour to make sure he didn't react to the anesthesia and then were given the all clear to go home.  The pedi GI shared with us some images from Miles stomach and that he found 3 areas of infection.  They took a biopsy of those 3 areas and it would be a week before we were given the results!  

 

Once we left the hospital we were all starving since we had been up since 4am and it was now a little after noon.  We asked Miles what he wanted to eat and he said Chick Fil A so we found the nearest one and got him his food.  Brooks and I went to an Italian restaurant that was recommended to us and Miles was so hungry that he even ate my salad.  The kid NEVER eats salad, but I guess he was just that hungry.  The ride home was pretty quiet for the most part.  He slept a little, we guess from the meds and then watched a movie.  Brooks and I were relieved that aspect of the testing was over and it was just time to wait.

The next week, Miles had a few more tests run that we were able to have done in Amarillo at a hospital about an hour from us.  This test was a little more difficult since it required Miles to drink this awful, chalky, radioactive stuff.  He didn't want to have anything to do with it.  The nurses and I tried everything we could to get him to drink even a few ounces.  The tricky part was he had to do it within a certain time frame from his initial images they took when we arrived.  Eventually, he drank enough to show up in the scans and then we just waited and took x-rays every 35 minutes to see if there were any blockages in his intestines or any reflux, etc.  Those scans came back clear giving us room to breathe and knowing that area of his body was causing his sickness.  Again, Miles was such a trooper and did really well hanging in with all the tests.  He kept saying, "mommy, why won't they take a picture of my face instead of my tummy?... my face is cuter!!"



A week later we received the results from Miles colonoscopy and it showed that he had 3 areas of acid inflammation.  There was no bacteria or parasites or allergy cells in those areas of inflammation so their cause is unknown.  They could be from 10 months of vomiting or they could be the cause of his sickness.  The GI isn't too sure, but at least we know there wasn't anything else.  And we're okay with that!  Miles is on an acid reducer med for 3 months and we will see how things go.  I've also started using Essential Oils on him when he was getting outbreaks and they greatly reduce the length and severity of his outbreaks.  We're hoping, praying, and believing that is all behind us and we're moving forward to better health and our kids being healed!!  

Thursday, March 20, 2014

News we've been waiting for

I've been trying to keep my posts in order, but I can't let another day go by where I don't put my feelings and emotions into words on this blog.  As I write this I'm still in shock.  I'm in awe.  I'm humbled.  I'm grateful.  I'm amazed.  I'm happy.  I'm relieved.

For the past two years, before our Brooklyn was born, we were made aware of a kidney condition she had called hydronephrosis.  If you want to read more about her story check out these posts:

Diagnosis

Texas Children's Check Up

Update

Another Update

Summer 2013


Fast forward 9 months and I took Brooklyn back to TCH this March for another ultrasound to finally see what her kidneys were doing.  Our urologist thought that her Hydronephrosis was gone last summer, but with the deterioration and dehydration, we just weren't sure.




After a 30 minute ultrasound and meeting with the doctor the next day... she was amazed and shocked! The first thing the urologist asked me was if Brooklyn had surgery?!?!  What?  No mam, she didn't!  Why?  Then she spoke the next words... "BROOKLYN'S HYDRONEPHROSIS IS COMPLETELY GONE!"  I just sat there with my jaw dropped.  I wasn't sure if I wanted to laugh or cry.  All I remember saying was Thank you Jesus!!  She talked a little more about her dilation looking normal and her kidney growth was inline with what it should be (although one kidney is still larger then the other one).

My next question was in regards to the deterioration that showed up in her last ultrasound.  It was my understanding that once damage was done to the kidney it couldn't be fixed and that's how it would be from that point on.  So you can imagine the shock that came when the doctor said Brooklyn's cortex was thick, inline, and exactly the size it should be!  Wait... I'm sorry.. Can you say that again?  Basically.... the deterioration that was on Brooklyn's kidney in the last ultrasound wasn't anywhere!!  Her kidney was completely healed!!  What an answer to prayer!!  This was not at all what I was expecting but I'm praising God for it and know without a shadow of a doubt it was his healing hand that touched our little girl.

It's so surreal that we were told no more appointments, no more ultrasounds, and the urologist hoped she never had to see Brooklyn again!  It's also crazy to look at Brooklyn and realize she doesn't have this condition anymore.  We learned of her kidney issue while she was in utero, before she was born, so this has always been a part of her!  Thank you Jesus for this blessing!


Friday, March 14, 2014

Spring Break

For Spring Break this year, I decided to pack the kids up and take a trip to Lake Charles for the week since daddy couldn't get off of work and we needed some fun stuff to do!  While Borger has been great and we are enjoying life here, we are still limited as to what fun opportunities are available to us.  Plus, we hadn't been to Lake Charles since the summer (okay, we did take a 2 day trip there in September but it wasn't near long enough of a time) so I thought it'd be the perfect time to go.  Brooklyn needed to have her 6 month kidney check up anyways, and since I didn't want to wait until the summer for that it was a win win!!  

Our week started by us picking up our baby sitter early Saturday morning and making the 12-14 hour drive to Louisiana.  I knew I didn't want to make the drive by myself and figured I could use the extra help during the week with the kids so a sweet, precious girl from our church gave up her spring break to come and help me!  Such a blessing Britany is!  The kids did awesome traveling and were pretty content watching movies and playing with toys.  We stopped for lunch and let them get out of the car and then made it to Houston before stopping again and letting them play at a Chick Fil A.  They needed to burn off some energy. They were just falling asleep when we pulled up to my parents house around 10pm.  None the less, we made it and survived an entire day of traveling in the car!  

Our first night my parents invited all of our family to come over and see us and had my brother, Kyle's, restaurant cater the dinner.  I love Izzo's and was so excited to eat some fajitas!!  


For the most part, our week was relaxing and spent with cousins and Captain and Kimmie.  As always, we set up the slip and slide and the kids didn't seem to mind that the water was cold.  They had a blast running up and down the hill outside my parents house and seeing how much soapy bubbles they could get all over their bodies!  To end our fun night the kids all played with bubbles and tried everything they could to pop one another's blown bubbles!





It was crawfish season while we were in LC and that was the one thing on my list to do while at home... eat boiled crawfish!  So we called all our family over and my best friend since high school and her kids and we ate some crawfish.  Britany, wasn't too sure of the mudbugs and not that interested, but she still tried some and didn't think we were too weird for eating them!  My kids loved looking at them and playing with their claws.  I did get them to eat a few and they enjoyed em!





My mom had a great idea to rent a bounce house for a few hours to give the kids something new to play with and they LOVED it!!! It was a huge blessing because we were told we had it only a few hours before they had to come pick it up and before we knew it the kids got to play with it until mid afternoon the next day!  They jumped and jumped and jumped!  Even I got in on the action a little!



My oldest brothers birthday was a few weeks later but we decided to celebrate with him a little early!  Jo's cupcakes and crawfish!


Two of my days were spent with Brooklyn in Houston at TCH and visiting a few friends.  It was a quick two days and half the time was at the hospital, but we did receive great news about Brooklyn's kidney condition.  You can read about it here.


This is Britany and she got to eat king cake, boiled crawfish, and shrimp for the first time in her life with us!

 When it was time to head back to Borger, I decided to split our drive up into 2 days.  We drove half way to outside of Dallas, spent the night, woke up the next morning and made our drive back to Borger.  This way was definitly 1000x times easier with the kids and on me and we made it home in plenty of time to hang out with daddy for the evening and get settled before the kids went back to school the next day!

What a great spring break we had!!


Sunday, March 9, 2014

Brooks Turned 30

My sweet husband celebrated his 30th birthday March 8! Originally, I planned a surprise birthday dinner with some close friends and was going to cook, and then our boys ended up getting Hand, foot, mouth disease (hence why Gavin is laid on the couch in some pics and looks a little rough).  Unfortunately, I felt it was best to keep our friends and their kids away from us until everyone was healed and feeling better.  Instead, we had a small party at home just the 5 of us.  We gave Brooks his presents, which the kids loved helping their daddy unwrap them, and we picked up a Cookie Cake, which the kids loved helping their daddy blow out his candles.  It was a fun evening all about Brooks and while it wasn't the original, ideal big party planned, but it was still good!!  






Friday, March 7, 2014

ABC Club

Gavin's school has a special program called the ABC Club when kindergartners can say, recognize, and establish the correct sounds of all their ABC's.. they get in the ABC Club!  Gavin was able to do all these things in the beginning of the year, but had difficulty with the letter J -in all aspects.  It took a while before he finally got it, but then his teacher hadn't really kept up with her classes ABC Club prospects.  So, in January she remembered to turn her kids names in and Gavin was accepted into the "club".  All that meant was he was able to invite Brooks and I to lunch one day and we sat on the stage in the ABC "Cafe" while he ate, he got his picture taken and posted on the wall in their school along with a special necklace, and also received a certificate!  It really is a neat concept to encourage kids to learn their ABC's.

Way to go Gavin!



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